A change in direction. Watch this space. The thing I find hard to process about having CF is the speed at which things can change. I can feel on top of the world for weeks and within two days I can crash to the floor in an exhausted, breathless coughing mess. When I’m flying high, […]

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1 February to 11 February General IV nightmare. Monday, 12 February End of IV clinic appointment. My lung function is lower than it was when I started. After ten days of constant sickness, several allergic reactions, a few days as an in – patient, disappointment and frustration don’t really do it justice. After admitting to […]

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October, November and December 2017. I love my new house. The tall ceilings, the space, the period features, the history. It was built in 1902. Having researched the history, it was originally owned by two sisters “of independent means” who employed a maid who lived on the top floor. Their father was by all accounts […]

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Friday, 13 October 2017 “I’m going to  pace myself” I said.  I need to make life easier, I thought. Less work, less stress, more time for the family. Six months later and here I am, living in a renovation project, surrounded by builders on my day off, watching them re-plaster almost every wall  on  the […]

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21 April 2017 Apparently, I’m looking “bedraggled”. So to the approval of Little Sis, I decided to do something about it and booked an evening of pampering and make up.  Little Sis decided to come too and took charge of the arrangements.  Tonight is the night and as planned, I drive to her house and […]

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16 April 2017 – A Silver Lining Well, I can now fit into my entire wardrobe. Bad news for House of Fraser, Zara and John Lewis but a big fat, money saving silver lining around the 11 crappy days of constant sickness for me. Maleficent may have taken up permanent residence for the term of […]

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H: “Mummy, it’s morning time… wake up…can I have hot milk please…can we go downstairs…can I have your iphone “ As I approach her bedroom, she sees my bandaged hand and she puts her little hand to her mouth and asks “Why isn’t your hand better Mummy?” I tell her that there is a tiny […]

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26 February 2017 – 6 April 2017 – Will my clothes please form an orderly queue at the back of my wardrobe until my next bout of illness?  27 February – 5 April 2017 I was unwell in some form or another for most of March and the beginning of April.  I  am very lucky […]

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Saturday, 25 February – Sprinkles We enjoy a very lazy morning in our pyjamas. H has insisted on having a boiled egg for breakfast but so far just looking at the yolk appears to have satisfied her hunger. Hubby has been AWOL for at least 20 minutes and I suspect he is on the play […]

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2 February to 24 February 2017 – Should I just put the heels on and hope for the best?  I have a limp and it’s slowing me down.  The morning rush is more of a hobble this morning. Flats or heels?  Neither make it easier to walk.  Should I just put the heels on and […]

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