Saturday, 15 October 2016 –  “Mummy, can I have a little sister?“ Lesson learned today. Don’t test your child’s ability to bat a ball (albeit inflatable) in your living room. She might be bloody brilliant and she may thwack it across the room and knock a full cup of hot tea (sweet with honey) into […]

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23 September 2016.   I have spoken to the Consultant on the CF Ward. She was lovely. I have an appointment for a flight simulation test. This will test whether I can withstand the flight without oxygen.  It requires several blood samples being taken from my ear. It’s worth it, it’s worth it, it’s worth it! […]

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21 September 2016 It’s Grannie Day but Grannie is late. Argh! I hadn’t factored that into my morning preparations. I have a 9.00am meeting with a client at their premises.   Hubby left before we were even awake. H doesn’t want me to get ready, she wants to cuddle. I managed to put my finger through […]

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28 August – 4 September 2016 Having enjoyed a lovely relaxing Saturday and a lazy Sunday morning with lots of cuddles from H, I sat down for brunch, which had been lovingly prepared by Hubby. I thought “I could get used to this”. I had managed to stream a Barbra Streisand interview on CBS Sunday […]

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16 July – August 2016 The latest visit from the liaison nurse showed that my lung function has increased to 75%. Hurrah, hurrah, hurrah!! I’m determined to keep it up. It’s difficult at the moment because as we are now in summer holiday season, I’m juggling holidays (not mine) with an ever increasing work load […]

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16 June 2016 to 15 July 2016 I have had an interesting few weeks. My daughter has developed a strong America accent. She’s always been very good at mimicking the American children on YouTube. It’s cute and she always got a good reaction, so she has always played to her audience.   Now, the accent is […]

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15 June 2016 H is still giddy from our holiday. She sings all the time. H: “Where are we going” [clap, clap, clap Dora the Explorer style] H: “to the nursery” and H: “Where are we going” [clap, clap, clap] H: “to the toilet” and H: “Where are we going” [clap, clap, clap] M: “to […]

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2 June 2016 – Holiday! Three days before we were due to go on holiday H caught a particularly nasty virus. Lots of coughing, wheezing, crying, sleepless nights and an unlimited amount of snot. The night before we flew she cried all night. I know this because I was up with her, cuddling her, rocking […]

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1 – 15 May 2016 – Genuine, open laughter The wonder of the month immediately following IV antibiotics; uninterrupted sleep, the ability to climb stairs, to hold a phone conversation without littering it with “excuse me” and “hold that thought”. I can laugh, genuinely, openly laugh without having to stifle it in fear of losing […]

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April – Home IVs – “Mummy, give me a biiiiig cough” I gave a copy of my diary from January to March to the liaison nurse on my first day of treatment and asked her to read it. The CF Team at St James’ Hospital are amazing and always have been. I have been a […]

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