5 July to 31 August 2018 – Summer of fun Two whole months of fun with my family, with only a few nights away, experiencing the delightful hospitality available in Leeds. I say family, but I hardly see Hubby. He is busy working for the two of us. Yesterday he was looking drained, so I […]

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21 June to 4 July – Magic, Magic, Magic. Our first morning in a Disney hotel. We enjoy a breakfast worthy of kings. Our waitress is incredibly cheerful. Apparently, twenty years ago she lived in Lincoln. Naturally, she has a go at her old English accent. She sounds like Daphne from Frasier but she is […]

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20 June 2018 – Love and Hope and Disney Magic Up before the birds again today, but this time it is the whole family and we are giddy. H gets dressed herself without prompting, with “Are we going to Disney?”, “Are we really going to Disney, Mummy?”, “Are we going to Disney today?”, “Are we […]

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Midnight – 19 June 2018 (Originally  posted on Twitter). Today, was an emotional day. If I had time I would feel drained but at lunch time tomorrow the whole family will fly to Florida for the holiday of all holidays, which means leaving the house at 7.00am, fully packed and ready to go. It feels like […]

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A change in direction. Watch this space. The thing I find hard to process about having CF is the speed at which things can change. I can feel on top of the world for weeks and within two days I can crash to the floor in an exhausted, breathless coughing mess. When I’m flying high, […]

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1 February to 11 February General IV nightmare. Monday, 12 February End of IV clinic appointment. My lung function is lower than it was when I started. After ten days of constant sickness, several allergic reactions, a few days as an in – patient, disappointment and frustration don’t really do it justice. After admitting to […]

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October, November and December 2017 I love my new house. The tall ceilings, the space, the period features, the history. It was built in 1902. Having researched the history, it was originally owned by two sisters “of independent means” who employed a maid who lived on the top floor. Their father was by all accounts a […]

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Friday, 13 October 2017 “I’m going to  pace myself” I said.  I need to make life easier, I thought. Less work, less stress, more time for the family. Six months later and here I am, living in a renovation project, surrounded by builders on my day off, watching them re-plaster almost every wall  on  the […]

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21 April 2017 Apparently, I’m looking “bedraggled”. So to the approval of Little Sis, I decided to do something about it and booked an evening of pampering and make up.  Little Sis decided to come too and took charge of the arrangements.  Tonight is the night and as planned, I drive to her house and […]

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16 April 2017 – A Silver Lining Well, I can now fit into my entire wardrobe. Bad news for House of Fraser, Zara and John Lewis but a big fat, money saving silver lining around the 11 crappy days of constant sickness for me. Maleficent may have taken up permanent residence for the term of […]

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